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[carer1]

Hello People

I care for my wife who has CA and when we visit her Neurologist we are welcomed with, 'Gosh another year gone.' Followed with a few 'Mmms' in answer to his sprinkle of questions and a final 'Well, see you next year.' at the end of our short session.

Anyone do any better?

SM

[mulberry_fruitcake]

Hi SM,

My neurologist is a lovely guy. He's also very realistic-there is no cure for CA and mostly they don't even know why it's affected us. I see mine every year too-he doesn't say anything new, but I'm glad that if anything does come up, he'll remember me. In the meantime though, my experience is pretty much the same!

[patsy42uk]

I have had three neurologists to date - one change was due to moving home and the other was due to the neurologist leaving Ipswich Hospital [UK].

I am currently with a female doctor who is part of a team - her clinic is referred to as MS clinic - apparently me being the only one with ataxia.

She has been very thorough with testing [and re-testing] but still cannot give me a definite diagnosis let alone prognosis.  She says there is still the possibility that my ataxia is due to MS.

She has accepted and followed the Ataxia UK publications which I gave her and is relatively easy to communicate with.  However, she does catch me unawares with her questions and comments - I usually find it difficult to assimilate what she has said and ask a relative question before she has moved on.  Not because she goes too fast but I am too slow.

On two occasions she has asked me if I have always had droopy eye lids but when answer that I don't know - what is the relevance? - she dismisses me.

I was impressed with her at first but am now not sure what to make of her.  She says she will consult a colleague in another hospital and see me again in 6 months.