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[patsy42uk]

The best advice I could give anyone is to subscribe to, or at least request information pack from, Ataxia UK - when I first received diagnosis of cerebellar degeneration, I looked it up on the web and discovered Ataxia UK.  That was life changing for me - not only have I benefited from their literature - especially those leaflets printed for the medical profession which I have taken with me on all consultations - but I have also been invited to start a local support group and made new friends who understand how I feel.

I am 64 and was not aware of my condition until I was in my 50's - the progression of my illness is very slow and almost unnoticeable to others so it is not really appropriate for me to discuss it with family.
Now I am dabbling with virtual groups and forums!!  I can not navigate these forums very easily but I shall persevere.

[mandymum]

Patsy,

Join the club, and I am just the carer not the victim

Good on you luv for trying all these sorts of things and for the consideration and care you are showing your family.  However,  the more people that understands or at least know how your condition is,  the easier it may be for you to not maybe so often have to hid your feelings.

Keep your chin up

[jayjay1251]

hi patsy i agree tyhe best support anyone can have is empathy the medics and system have no idea abiout the pain and isolation survivors have yes i siad survivor coz sufferer conjures up images of someone curling up and dying nooooooooooooooooooo way