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[themitch]

I was just wondering how everyone came to terms with having Ataxia? And the fact that life is going to change so irrevocably? For you, for your family, and for all the people around you?

I know my mum has taken years and, I think, is even now still coming to terms with it. She's very down, very low a lot of the time, also due to the fact that she just seems to be hit by one thing after another - back ache, then tooth ache, then a problem with a toe nail, then a bad cold, then a water infection, then stomach problems, then terrible neck ache, then another water infection, and on, and on ...

Individually they'd be fine, but when they're almost queuing up to hit her I think she sort of feels what's the point? And yet, amazingly, she fights each one with gusto, and does come out the other end. It really does seem to be relentless, though, it's no wonder she feels so low, it's like she's continually being kicked, with almost no chance of getting up in between bouts!

Is it/was it like that for anyone else? How did you handle it? What did you do? Did anyone say anything to you that really helped?

Any help?

theMitch

[ROYGBIV]

Apparently, there is a Clinic/doctor, based in LONDON??, that deals with Ataxia ??

Anyone with any more info.......Alan

[tynckas]

there is a specialist clinic for Ataxia held at the National Hospital for Neurology and Neurology, Queen Square, London. WC1N 3BG.
one of the Doctors is Dr Wood, the name of the other Dr slips my mind at the moment. Have you contacted ataxia uk www.ataxia.org.uk they have been most helpful to me & others.
There is also a virtual chat room where some affected by ataxia meet on a Sunday & provide just general chit chat & a giggle
www.tru-skool.net/virtualataxia.
Hope you may find some help from these ideas
Dawn

[ROYGBIV]

Do the chat thing (when I am home)

Will get in touch with Ataxia UK ASAP (have to talk mto them regarding other matters, anyway)

THANKS

 ALAN T

[mandymum]

Hi Mitch

I'm very new to ataxia, not to mention chat rooms!!!

I found this site just under google.  However I'm wondering do other people from other countries except the UK visit this org with there own country contacts eg doctors, specialists etc etc

Hope your mums o.k.

[themitch]

Hi Mandy

The site is open to anyone who wants to participate - from the UK or anywhere. So far we have Graham from Albania on here and Roy from Wales. It would certainly be interesting to hear from other people from around the world, find out what their experience is.

I'm in the process of setting up ataxiaforums.com so that the site doesn't look quite so UK specific.

Hope your mums o.k.

Thanks

[iceteezz]

I just found out the meaning,doctor talked about me seeing.
I went to the doctors and had all these tests and then looked up Ataxia
and since have been on this computer.

still trying to feel at ease about it

didn't know but had this 7 years ago to now all these symptoms