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carer1
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« on: Saturday 03-Feb-07, 12:17 PM »
Just seeing Alan (Roygbiv Wales) comments in Introduction boards about support, shows not much difference between areas. (We live London)
We found ( my wife has CA) that the doc's seem to hang everything on the Ataxia hook.
And the experts only want to tell us that Ataxia is so individual they can't answer our questions about a symptom.
Makes one feel a tad isolated.

SM
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Kez
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« Reply #1 on: Tuesday 06-Feb-07, 08:14 PM »
It's like bangin your head against a brick wall! >:(
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jayjay1251
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« Reply #2 on: Thursday 01-Oct-09, 04:38 PM »
the medics and the establishment seem to label ATAXIA as a label they treat everything as a text book case they have told me that
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